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If you’ve been reading these posts for the last week, you know that my intention was to write two posts. The first, about help, I did write. The second, I still haven’t written. This is very much in keeping with the way I write anything. I have a general idea. I put the words on the screen. And then other words arise out of interaction, and, well.

We, as parents, all want our children to be happy. I take that as a given. We do not always make our children happy - but at base, we want our children to lead happy, long lives.

Given the way life works, life is not predictable. We are adults, our children are not. We know the things that caused us pain - and we want to help our own children avoid that pain, and avoid bearing those scars.

But.

Pain is often how we learn, and how we grow as people. I’ve learned fundamental and important lessons out of the things I’ve done that hurt me most. I would not be who I am today - and I mostly like who I am, although this work-avoidance-of-page-proofs is perhaps not a sterling character trait - if I had not stuck my hand into all kinds of figurative fires and learned that they’re hot. Wanting our children not to have to learn the hard way is natural, but the truth is: we can’t save them from pain. It’s part of life.

When I was pregnant, my husband and I sat down and started our long and continuing discussions about child-rearing. I had seen many things in my childhood that I really wanted to avoid in my own house. How many of us heard “Don’t tell your mother” when we were out with other adults? I heard it when I was eating ice-cream, or when I was doing something particularly difficult at the park, or when I ran across the street instead of walking to the lights.

But I didn’t want that. I didn’t want the sub-textual assumption that I was the death of all fun. I mean, yes, I’m a parent, so I’m pretty much guaranteed to have to carry that flag anyway - but I wanted to carry it for the right reasons.

So I wanted to hash things out before hand. I was, at this time, almost thirty, and I had some idea that child-rearing, like washing dishes (who puts the cutlery into the dishwater first? Seriously, first? Glasses first!) and Christmas, was fraught with instinctive and visceral assumptions about right and wrong. I wanted to make sure that at the start of things, we were on the same page, and that if we had strong disagreements on how our children were to be raised, we had them, and sorted them, before that child was born.

This was a pipe-dream, because it’s impossible to predict all of the situations a child will put two parents in. But it was still useful, and still important. I didn’t want to be having arguments about how to handle a child when the child was actually there as collateral.

My husband has never heard his parents argue. Ever. They never argued in front of their children. So hashing things out when there was no child made perfect sense, to him. We both agreed that we wanted to present a united front if there was conflict.

And of course, we both agreed that we wanted our children to be happy.

#

What, in the end, makes people happy?

Parents of ASD children often struggle to make them conform to social norms. They do this in part because having no friends is painful. Being laughed at is painful. Being singled out is painful. They want their children to fit in, because if they fit in, they will avoid that pain. They know that their children will have a much harder time of it.

As we did not know, when I was pregnant, that our oldest son would be diagnosed ASD, that was not on the table. We figured out our base household rules early on: Cause no harm (to yourself or others). This breaks down into smaller categories, but at base, that’s the heart of it.

But when it came to happiness, we really had to sit down and think about what, in the end, made people happy. This was not as simple as it sounds - if it even sounds simple. I know a fair number of people; some are happy, some are definitively not. I had some ideas of what, in the end, constitutes happiness.

I do not know many happy people who have no sense of responsibility. Not the responsibility that is foisted on one, for cleaning dishes, etc., but the responsibility of choice, consequence and action. An infant is unlikely to care about these things - but adults are rarely happy if they have no sense of responsibility; they feel that things are never in their control, and their fate is always in the hands of everyone else. So, it was one of the things I wanted our children to develop. Obedience is not responsibility, and it’s tricky to develop the latter because you want your children to suffer consequences that are not devastating when they learn the connection between action and consequences. Obedience is required at times. We discussed how to balance the need for obedience with the need for responsibility.

People who are constantly trying to be something they’re not, are very seldom, in my experience, happy people. They look happy, some of the time. But they’re not generally happy. So: I wanted our children to have a strong sense of who they were, and enough confidence to be that person - whoever that was. Telling them to be something else for the sake of their future happiness did not seem, to me, to be a guarantee of happiness; it seemed to be the inverse. If you tell your child to pretend to be something he’s not all the time, doesn’t that imply that what he is is unacceptable?

Not on this list was: having tons of friends and being liked by everybody. I understand that some people feel this is the key to happiness, but it seems to me it’s the external expression of a base state, rather than the state itself. If you are comfortable in your own skin, you generally have friends.

Of course, having said this, we did want our child to have basic social skills that would allow him to navigate the world outside our house. We did agree that we would of course insist on basic manners (please, thank you, ask before you touch things that don’t belong to you, apologize if you’ve done something wrong).

But those always seemed to me to be the expression of other things. We wanted our children to learn a modicum of consideration for others, and respect for others, because that respect is the flip side of self-respect.

We didn’t know, before he was born, that he would have a few more challenges to face than a normative child.

But…having said that, ASD did not markedly change what we felt our son required to be a happy person. It changed the work. It changed our approach. But it didn’t change the basic, simple precepts. I still did not believe that attempting to force external conformance to social behaviour would result in a happier child. If it came to him more or less naturally, that was fine; if it didn’t - we needed a different approach, but all of our attempts were still informed by the same goals.

We couldn’t force our son to be something he was not. It did not seem to me to be helpful in the long-term to try. Social skills are things that most normative children pick up instinctively. They notice things, they generalize, they understand them. ASD children don’t. Telling a child who simply cannot understand that they must achieve certain social behaviours which are in no way instinctive immediately puts them in a position where their inability is a terrifying setback: they must do something that consistently makes no sense or they will suffer a terrible fate. If they feel this is true, they are in a constant state of uncertainty and near panic, because they do not know what to do.

Would my son be unhappy if he had no friends? Yes, he probably would. Would he understand why he had no friends? Not immediately, because friendship is hard to explain in all its complexities, when theory of mind doesn’t even exist yet. But I reasoned that it would be worse if we attempted to drill into him all the reasons why he must do things that make no sense at all. It wouldn’t be better. Why? Because I thought the aping of rules whose substance were entirely outside of his intellectual grasp would not, in fact, make him any friends.

Fear and anxiety do not make for happy people. Loneliness doesn’t, either. But I’ve been afraid and anxious, and I’ve been lonely in my life - and fear and anxiety were always worse, for me. My son is not, and was not, me. But our parenting decisions are informed by who we are.

I was not constitutionally capable of enforcing conformance, because I could not viscerally feel it was necessary for his happiness.

If my son made no friends at school (and we were lucky, in that he did, regardless), but he felt secure in himself in his own home, I thought he would be a happier child. If we were constantly correcting him, constantly nagging him, constantly telling him to do things which made no sense to him, I thought the results would be twofold: First, he would go to school desperate to “fit in” when he was simply intellectually incapable of doing so. Desperation is the single thing that makes children antsy. If someone is desperately clinging, desperately and obviously trying too hard, it makes all the other children nervous, and wary. It often makes them unkind.

It is setting up a child like ours for social failure. Since my son couldn’t grasp the rules at play, or the rules of play, as clearly, if we made it clear that failing to fit in was ultimately a total disaster, how would this have made him happy? We accepted, given the ASD, that he was going to have difficulties, period. We did not think we could over-turn them by strict rote. If we had been capable of making ourselves believe that he could, our choices would have been different; we simply did not believe, given the facts, that it was possible.

Second: he would, if our anxieties to make him conform were our chief interaction, feel under constant attack at home. Would we, in the attempt, be making his life happier? No. Even if we did it because we were terrified that his inability to fit in would isolate him, it’s not the way he would see it. It’s not the way he would experience it. Worry-as-love usually impacts children in a far more negative way. If we were constantly telling him that what he was doing was wrong, how could he learn to trust our love for him as a person?

We chose, instead, to accept him as a person; to enforce Do No Harm, to attempt to make clear the ways in which the household depended on responsibility to run, and to keep a clear-eyed hope that in the future, things would become clearer, and they would therefore be better. I would discuss people in general, people in specific, and the reasons I felt that certain people behaved in certain ways, and when he was in his early teens, he was interested in those discussions. He started to observe other people through a much more objective lens, and he grew to understand a lot that had escaped him in his childhood. If the knowledge was not instinctive, when he did finally gain it, it was objective, analytical.

Because things are not as instinctive, he’s become more observant. He’s adapted. Has he changed? I’d say he’s grown. Experience has shaped him, much of it external to us.

What I hoped for, as our son grew, was that he would reach a stage at which I could explain why I thought normative behaviour was important.

It’s not to make friends. Your friends are people who will like you for yourself. It’s to work with strangers, with class-mates, with doctors, with co-workers, with people who will not be your friends, but with whom you have to interact civilly on a daily basis. They do not have to like you for who you are. They just have to be able to get along with you.

And he does understand that, now. He’s eighteen, almost nineteen. Was school always fun for him? No. But it’s not always fun for normative children either. Things upset him. Things enraged him. Things made him blindingly happy. He didn’t feel the need to conform socially, but he was flexible by this point. He was comfortable in his own skin. He could alter his behaviour if he thought the situation warranted it (when he was volunteering with much older women, for instance). He could make decisions based on a broader range of conflicting social needs. He made friends with people who shared his interests - in the band, in computer games, in Magic the Gathering. In his last year of High School, he joined the drama club and tried out for the school play.

It was Harvey.

He was cast as the lead, because he has a slightly formal way of speaking, and it suited the character so completely.


And now, I am running out of the house because it’s our 23rd anniversary :)

Comments

( 31 comments — Leave a comment )
trektone
May. 27th, 2012 11:27 pm (UTC)
Happy Anniversary!

And ... Harvey!
msagara
May. 28th, 2012 05:03 am (UTC)
And ... Harvey!

I know :). We got to hear someone in the audience say “who is that kid? He’s brilliant!” because, of course, they had never heard my son talk casually.
drenilop
May. 27th, 2012 11:34 pm (UTC)
Michelle, I love these posts. I don't yet have kids, let alone a special needs one, but my spouse and I are both the over-thinking, overly rational types who also need these kinds of rules and decisions to be laid out out ahead of time. And it's not inconceivable that we'll have kids who also require that kind of framework to be happy and successful. (You're talking to the girl who demanded, at age 6, that her parents provide a systematic rule for which grownups were Mr. and Mrs and which could be first names.) But these posts are really helping my husband and I prepare to parent for ourselves. They're raising good questions and showing us how other intelligent, rational, concerned parents do things. You're giving us an inside look at things that most of us never hear or get to ask others until it's too late. And it's an incredibly valuable service. Most people who take an approach like this don't have the writing skills or the audience to share their experiences in such a compelling way.

I really do hope you plan to publish these somehow. You've put too much energy and thought into them to let them languish in the blog-stratosphere.
msagara
May. 28th, 2012 05:05 am (UTC)
I really do hope you plan to publish these somehow. You've put too much energy and thought into them to let them languish in the blog-stratosphere.


All of the fun parts are writing it; all of the un-fun parts would be massaging the posts, which are often a little rambling, into a single, cohesive shape.

Many of the columns come out of my reading of other people’s responses and thinking about their various takes on things, so the whole is shaped by a community, if that makes sense?
mizkit
May. 28th, 2012 05:23 am (UTC)
I'm not entirely certain you don't already have cohesive shape to the whole series of posts, but I'm being brave and holding off saying "god, try to get this published!" until you're done writing them all. Or have a book's worth, anyway :)
drenilop
May. 28th, 2012 12:54 pm (UTC)
"Or have a book's worth, anyway :)"

Noooooooo!! Are you really telling *Michelle* to wait until she has a book's worth?!?!?! Do you KNOW how long Michelle's books usually are?!?!?!? I'd settle for a novella!
phantom_wolfboy
May. 28th, 2012 08:21 pm (UTC)
I wouldn't worry. The last time Michelle tried to write a book, it turned out to be a six book series. So a novella would be two books, at least. :)
msagara
May. 29th, 2012 12:30 am (UTC)
I wouldn't worry. The last time Michelle tried to write a book, it turned out to be a six book series. So a novella would be two books, at least. :)

Two - it was two books...

I feel a strong urge to start carrying a large water pistol. Hmmm.
msagara
May. 29th, 2012 12:29 am (UTC)
LOL! mizkit does, sadly, know how long my books usually are.
drenilop
May. 28th, 2012 12:53 pm (UTC)
The community aspect is even better - that means it's broadly informed and part of a collective discourse.

I know the annoyance of editing. If you DO decide that you'd be willing to publish them (or allow them to be published), I'm more than happy to donate editing/copyediting services (my part time job, when I'm not writing my own stuff) to help it see the light of day. A quasi-epistolary book would be entirely possible, and given the original format and the way modern people think about and navigate information, it would be appreciated, I think.
chomiji
May. 28th, 2012 01:19 am (UTC)

Happy anniversary!

And it's awesome that he was the lead in the play!

msagara
May. 28th, 2012 05:06 am (UTC)
Thank you :). We had a lovely dinner, and watched the first episode of the BBC Sherlock, season 2.
tekalynn
May. 28th, 2012 01:35 am (UTC)
Happy anniversary!

Your posts really move me with their clarity and compassion. Thank you for writing them.
msagara
May. 28th, 2012 05:08 am (UTC)
Thanks :).

And also, thank you. I’ve noticed on posts like these - as opposed to my more heated and intemperate rants, I often get far fewer comments, so it is nice to know that people are reading them.
msss
May. 28th, 2012 11:47 am (UTC)
Oh, we're reading them. At least, I am. :)

I find them full of fascinating insights, perhaps because I'm not planning to bring up a child any time soon. And thus possibly never.
msss
May. 28th, 2012 11:47 am (UTC)
Also, happy anniversary!
_ocelott_
May. 28th, 2012 01:59 pm (UTC)
I read them all, and enjoy them very much. I'm less likely to comment on them, though, because I don't feel like I have anything worth contributing to the discussion. I do appreciate the posts very much, though.

And happy anniversary!
redrose3125
May. 31st, 2012 12:05 am (UTC)
I'm forwarding some to my godmother, who works with autistic and asperger's-having children.
controuble
May. 28th, 2012 02:31 am (UTC)
Happy Anniversary!

And thank you for another make-me-think post.
spiffikins
May. 28th, 2012 03:34 am (UTC)
My mom came to a similar realization when my youngest brother was very young. Because he was her fourth child, she recognized that all this kid ever heard was "no" or "don't do that" or "stop that!" when he did impulsive and/or dangerous things.

Every kid hears "no" - but she had enough experience to recognize that he was hearing a lot more negative comments than positive ones - so she enlisted all of us to make a special point of being encouraging and positive and commenting on the things he *did* get right - even the little things we were taking for granted - to balance out the stuff we had to say no to.

It was hard work - and we had to keep reminding ourselves to do it - and to continue to praise the tiny things, even in the face of the BIG ENORMOUS things that weren't working.

Years later, we needed a report done by a psychologist for the school in order to get him into a particular program. The psychologist wrote his report without talking to my mom or even to my brother. My mom said "thanks but no thanks - if you're not going to talk to my son, we don't want your report". The doctor grumbled, "these kids are all teh same" - but agreed to meet with my brother and my mom, even though he considered it a waste of time.

Afterwards, he said to my mom that my brother was NOT what he was expecting - he was *miles* ahead of where he "should" be based on the doctor's experience. And the two things that the doctor pointed out as being the reasons he could see - were that my mom had treated her youngest the same as the other kids - he was expected to at least attempt every task that the other kids had done at that same age - and if we had to modify things a bit, that was fine, but the doctor was astonished that he knew how to use the bus system, and the library and could go up to retail clerks in stores and ask for assistance.

The second thing that he said, which he was also surprised by, was that "David likes David". He said that at this point, most kids in his situation had poor self-confidence and were so used to hearing only negative things, that they didn't have any belief in themselves as being a likeable human being.

My brother knows he is loved. He knows we get upset with him and he feels bad (for a while) when he disappoints us - but he knows he's loved.


msagara
May. 28th, 2012 05:10 am (UTC)
My brother knows he is loved. He knows we get upset with him and he feels bad (for a while) when he disappoints us - but he knows he's loved.

I think that’s the key thing in any child’s life.

Love is a little like help, in my previous post on help. Children can’t always see the motivations that are behind some of the stricter decisions, because they mostly seem themselves and their own feelings. Parental fear is so far above them, they don’t really understand that there is love and concern behind some of the demands.

Your mother was a very, very smart woman.
mizkit
May. 28th, 2012 05:24 am (UTC)
Happy anniversary!
chrysoula
May. 28th, 2012 09:12 am (UTC)
At some point, maybe in a year or so, I should explain to Robin that manners are the original information exchange protocol. Thank you for helping me think of this.

mtlawson
May. 28th, 2012 09:36 am (UTC)
Happy Anniversary!!
lily_bless_her
May. 28th, 2012 10:29 am (UTC)
Happy Anniversary! Hope you enjoyed Sherlock. I didn't enjoy the 2nd series as much as the first. But it's still brilliant.
Yes, a child needs to know that they are loved, whatever. My parents always made it clear that we were loved, though sometimes they may not have liked what we had done! I have tried to be as good a parent as mine were to me. We are a 'different' family. Have you ever read 'Multicoloured Mayhem: Parenting the Many Shades of Adolescents and Children with Autism, Asperger Syndrome and AD/HD' by Jacquie Jackson. It is a wonderful book describing her very different family and is an inspiration! I read it at a time when I was allowing other peoples opinions to cloud my own. Being a single parent has made that job a tad more difficult. My children know I love them and I will fight tooth and nail for them.
Son and Heir 2 was rejected from Sixth Form, because they could not say for certain that he would get his Maths and English GCSE. I made myself very unpopular by saying he was being discriminated against. He was finally accepted because the Headteacher liked him and had a soft spot for his pupils with special needs. He did failed English and Maths, but passed English on resit but sadly failed his Maths 4 more times. (I think the 4 D's and 1 E made a 'C'- they don't think so)However he did go on to get 3 A-Levels and then a Diploma in Art and Design and is now at University.rt I hasten to add. He kept his statement of special educational needs till he was 19 - very rare.
Son and Heir 1 calls me the Warship Parent (as opposed to the helicopter parent!), because I stay out of the way until I am needed and then go in all guns blazing!
I don't stress the small things - tidy bedrooms, picking up clothes, though I do make it clear that if they'd like a stress free mother it is in their best interests to try to get the washing to the basket! But my children know what does rile me. They know what I feel is important.
My children know that I am very keen on politeness. I am so proud when people have come up to me and said how polite my children are. They do not fight, they do not hurt each other, they talk to their Nana and Grandad...And if they could stop swearing I would be really really pleased. My home has always been an 'open house' to their 'friends' (tho' sometimes climbing over d'n'd boards, lord of the ring and warhammer gets a bit irritating and it would be nice to know whose sleeping in the living room).
As a single parent with no family living close by - my parents are wonderful but live some distance away and are now very elderly - I rely on my friends for day to day mental support! I have friendships that have lasted years and reach back to university, school.... so I have found it heartbreaking that my sons don't find friendships so easily. Son and Heir 1 has acquaintances - though at University he now has a group of like minded 'friends'. Many also have aspbergers or dyspraxia/dyslexia. They seem to accept each other so much easier. They accept their differences and play down any oddness. But no one except his girlfriend is allowed close. Son and Heir 2 has long term friends from early on in school all into the same interests, but has not made friends at University. He can't even tell me his flatmates names.
I feel I may be trying to put my feelings of friendship and the importance of my friends onto them. Maybe it's a boy thing! Maybe they get that support from me!
We all want our children to be happy - well I believe so. Sadly Son and Heir 1 does suffer from depression - I gather that is common. Happiness is a very difficult concept really. But it sounds demeaning to say I want my children to lead meaningful lives.
I want my children:
.... to do the best they can.
.... to lead lives that they enjoy
.... to love and be loved
.... to get what they want from life and not be disappointed
.... and could one of them earn a little money to take their mother to Egypt on holiday?....new sofa? Remember my birthday/mothers day without me reminding them and telling them exactly what book/cd I would like. Prompting ruins the surprise.
Perhaps love is more important than happiness.



mmarques
May. 28th, 2012 11:14 am (UTC)
That's a good point about happiness. Sometimes people who don't take control over their lives are happy - but they depend on others and don't know how to get out of situations that they don't enjoy. I never really thought about it this way until your post.
(Anonymous)
May. 28th, 2012 01:53 pm (UTC)
WOW, I have normative children although they are considered bright and I love these post. I want to pick your brain for hours and then have my children come meet you and your son. I think my children would have a great time just discussing things with you.
These posts are wonderfully informative without being judgmental. I really enjoy looking at child rearing form another perspective.
parsleigh
May. 28th, 2012 02:04 pm (UTC)
I enjoyed reading the post. I feel grateful that our two kids have gotten to the point where they are no longer dependent on us for much, though that doesn't mean we don't try to help.

Happy anniversary!
phantom_wolfboy
May. 28th, 2012 08:23 pm (UTC)
Happy Anniversary!
la_marquise_de_
May. 29th, 2012 10:30 am (UTC)
Happy Anniversary.
I am impressed, over and over by your *mindfulness*. You bring such intelligence, such thought, such awareness of context to everything you do. And you and T are great parents.
(Anonymous)
Jun. 1st, 2012 11:00 pm (UTC)
Your insight is is wonderful. I wish that i had so much foresight and put so much thought into my own childrearing. God, or whatever higher power you might believe in, chose wisely when gifting you with your children.
( 31 comments — Leave a comment )